May 2010

Happenings….

• Scleroderma II: The Hands

  September 5, 2010 in General

  When I try to describe scleroderma’s impact to someone, the first thing I always do is hold out my right hand (my left hand is beginning to follow).  What they see is a crooked mass of fingers that can no longer be straightened.  I then say, “What you see in my hands is what it is doing [...]

• Scleroderma–The Beginning

  September 3, 2010 in General

  I thought today I’d start at the beginning, when I first found out that I might be facing some unexpected challenges.  It was a busy time.  George and I had set a wedding date and decided on a destination wedding as we really only wanted family, which would be hard to pull off if we [...]

• Scleroderma I

  September 2, 2010 in General

  Today, if my darn fingers will obey my brain, I will start to ponder a request from the dedicated professionals at the Scleroderma Foundation to write about scleroderma for children and teens.  Quite a challenge, as it forces me to actually face what it DOES mean to a person.  That is something easier to duck, [...]

• Why Blog?

  September 1, 2010 in General

  This man sits every day in this spot on the Erin Islands, playing his accordian and waiting for the few hearty tourists who make the trek across Galway Bay to this little cluster of islands that are more rock than dirt, yet where wild flowers abound upon every morsel of dirt.  The islanders haul the dirt up [...]